My anxiety is loud.

In a group I belong to someone shared a picture saying “My anxiety is quiet” – it went on to say that others wouldn’t see an outward change. That they are not lazy, just overwhelmed. I understand this. Sometimes, my anxiety is quiet…

However, most times – my anxiety is SCREAMING loud.

My initial reply was, “my anxiety is loud… sometimes in volume and sometimes in action – i cry sometimes. i say ‘i can do this’ repeatedly under my breath until i can really do it, i get overwhelmed and pass out, i get about two minutes warning on that, my eyes start closing, nothing i can do will stop it. i stare off into space… stop talking… words trail off… when i shake my head and see again, it starts over… i organize ideas and shift them, i talk about what i’m going to do and how terrifying it is in hopes that someone else knowing will make it less scary… i have other people dial the phone or even just hit the call button…. i can’t even make myself make coffee some mornings… not because i’m lazy but because i’m afraid i’ll screw it up… my anxiety is so loud.”

But there’s more, isn’t there…

Sometimes i’m doubled over in pain from my chest. Sometimes I overheat until I get nauseous. My anxiety clouds my judgment. It forces me to forget things I am afraid of trying to protect myself instinctively. I lay awake for hours trying to quiet the fear that something horrible is about to happen.

My anxiety is deafening. So much so that I cannot always even hear people speaking to me. I become oblivious to what is around me because I’m so focused I can’t see it… or because I’m so hyper-vigilant in my fear that I see all of it. I fidget endlessly, or I’m stuck unable to move.

I see so many things that say “anxiety is… ” or “depression is” or “having anxiety and depression is…” but let me be really clear a moment. The only completion to any of those is “personal”. They affect us all differently. Knowing one person’s symptoms does not mean you understand everyone’s.

My anxiety is loud. What is yours?

~Brutally Honest Eccentric~

I have no excuses…

Well, I have plenty of excuses but what would be the point? It’s been over a week again. I kept saying, “I’ll write tomorrow.” Tomorrow is a fictional time that never comes.

I have to make a lot of phone calls Monday and it’s scaring me because I don’t do these types of calls well – initial appointments, billing and insurance issues. I’m truly terrified. A lot of us talk about phone-phobia and I don’t have it as bad as I used to, but there are certain times it “flares” up.

I self sabotage. That’s why I’m awake. Bed time is 6:30pm and it’s three hours past and I’m wide awake. This is something my mind does when I fear tomorrow. I don’t have control. I took my ‘as needed’ medication and it’s not enough to calm me for this. This happens so I’m stuck in a state of overtired and barely functional the next day. Even if that happens, these calls are necessary.

Some of you reading this are thinking “Just call them, it’s not that hard.” Some of you know that for many of us, it’s really that hard. It’s paralyzing. It’s “crying on the floor in the kitchen until your sister dials the phone for you” hard sometimes. Love you, sis, more than you know sometimes.

I didn’t do the things I had to do last week, so I am trying to phrase this as “need to do Monday” rather than tomorrow, because tomorrow never came last week, and I can’t afford to let that happen again. I need to hold myself accountable. I want to do this, even though I totally don’t want to do this…

So here’s the deal… I will post again when my calls are finished. If you have something you need to do but are putting off, feel free to comment here, and when we get to the next post, we can congratulate each other on completing our necessary tasks. Things like showering, going to the doctor, cleaning the kitchen, calling your mom… anything counts. Wish me luck, and I wish you luck as well.

~Brutally Honest Eccentric~

 

To Do List:

We all have our days where it’s one foot in front of the other… simple tasks are hard, harder tasks are unthinkable and even enjoyable (usually enjoyable) things feel like work. I hate lists… I get overwhelmed by them, but I figure for today, why not. This is what my “list” usually entails (in literally no order at all):

  1. Coffee … or tea … caffeine.
  2. Make cigarettes
  3. Take Meds
  4. Check social media
  5. Play Clash Royale
  6. Play fishy game (like Candy Crush but I like it more)
  7. Play search and find game
  8. Eat
  9. Shower
  10. Clean anything
  11. Drink enough water (near a gallon)
  12. Check the cat has food and water
  13. Take nap
  14. Go to bed

What my day really looks like lately:

2, 13, 1, 12, 2, 5, 4, 3, 5, 11, 3, 8, 3, 14.

I have no interest in half my games, not even Ingress right now because it’s been so hard for me to get together with my friends. Eating happens because C is a chef so, food happens. I’m just kinda blowing off most of everything still. It’s not intentional, it’s just that my motivation level drops significantly under stress or during depressive episodes. I want to do all the other stuff, or rather, I want to want to do the rest of it.  I’m out of spoons, I’m out of sporks, I’m just out.

So there’s me for the moment… how’s your list looking?

~Brutally Honest Eccentric~

Still worse than I think…

It’s been days because I haven’t been able to get a hold of myself. I can string a few words here and there, perhaps a facebook status but even those seem rare for me at the moment. Our apartment is clean, I am clean (I showered, go me! woohoo!) and the cat has food and water. Beyond that, I can’t focus on a show or a game…

I want to feel motivated to do SOMETHING. I want to feel motivated to do ANYTHING. I don’t. I barely had the motivation to make the cup of coffee that’s fueling this post. I’m still not sure how I managed to do that much.

Yesterday I was nauseous again. My fiance had one day off and I felt like I ruined it. I know that I’m still more depressed than I think I am because I feel like I’m ruining everything lately. I know I’m not. My logical mind is like, “Just stop, you’re doing fine!” My emotional mind is off somewhere crying in the corner again.

My friends have done a pretty good job a teaching me to stop apologizing for self care, so I hope you all are doing better than you think you are, even if it’s just for the day.

~Brutally Honest Eccentric~

Worse than I think I am…

It’s strange when my actions don’t really match what I think my emotions are. I have been off lately and I’ve been trying to figure it out. I haven’t been up for talking to most people, especially not one on one. Conversations about myself are still down to “How are you doing?” “Oh, I’m okay.” We all know I’m not but I’m okay enough to get away with it.

I can’t get away with it at therapy though. I don’t remember if I gave him a “name” or not, but for today, we shall call him Jim. Jim doesn’t let me get away with “I’m okay.” It’s pretty much his job to call me out on that. So, I started going through the fact that hygiene is getting more difficult to handle again and I’m losing interest in most of my games and my shows that I usually love. It hits me. These are signs of depression.

Some of this stems from being so sick as a side effect of my body getting used to a medication again. A lot, actually, because besides ‘feeling sick’ – I’m also isolated right now because leaving the house for more than an hour or two makes me even more sick the following day. I can’t change this. I need the medication for now until we can at least discuss other options. I need tests done for that. I am working on it all the best I can…

However, I’m still more depressed than I thought I was. This doesn’t usually happen to me. I’m usually much more self aware, much more able to gauge my own emotions. Being sick for a month will screw with your perception of everything though, I think, including yourself.  I am safe, I am not in danger of any type of harm to self or others, I’m just not quite emotionally available to people right now. Not as much as usual.

I will drink my peppermint tea (which I am so tired of but it helps), and I will snuggle with the cat. I will find new games to play for now for distraction and new shows to hold my attention until I’m more myself again. There’s just a lot of stress and sadness and grief in my life recently and I need to take time to process it.

I hope if you find yourself in a similar position, see signs of depression in yourself before you really “feel” them, that you give yourself permission for self care. Don’t just wait for it to get worse, do whatever you can to stay even or move forward, so when it passes, you’re ready to keep going in life.

~Brutally Honest Eccentric~

Life after Neurology, or during it

I may have underestimated how much I have going on in my life currently. I said I would be back after my crash, but then Monday I had my neurology appointment and Tuesday was therapy, so they each came with their own downtime.  We’ll get back to my Sunday and my crashiness another time. Right now my high brain pressure is what’s overtaking my thoughts, so I’m going to go there for a bit. My neurologist, Dr. J., is consulting with another doctor, Dr. M, who I may be seeing as well to get his thoughts on my condition and my treatment issues.

I have to, at least temporarily, restart the medication that kills my sex drive as we don’t want this to worsen while we work on finding a treatment plan. The reality is I may have to continue with that medication the rest of my life. Not something I consider with any sort of happiness, but the reality is that between my vision or my sex drive, I would rather keep (both, but if not…) my vision. So, back on the pills I go, and immediately notice another side effect that I hadn’t realized. Yay. Trading pain for misery and pain isn’t high on my list of things to do, but we do what we have to in life.

Dr. M is a neuro-opthalmologist, so basically brain/eye issues, he works mainly across the river but has office hours on this side. I didn’t know whether or not there were any neuro-ops on this side, honestly, which was why I went to the Dr. J in the first place. He works at the same practice as the man that diagnosed me five years go – the one that retired… If you’re looking for a specialized specialist, it feels prudent to get the referral from someone else in the same field.

Explaining my problem to Dr. J. I broke down crying three times, maybe more… it’s a good thing they keep tissues on the desk. I was trying to explain the difficulties in making it to appointments across the river, the fact that although I have gotten past a lot of my agoraphobic issues, I can’t travel alone to the city yet, the difficulties with the side effects, how terrified i was that this was still happening…

I had to stop myself and just explain that I’ve been having a really rough month, that although IIH was plenty reason to be upset, I’m usually more composed in these situations. He’s a nice doctor, he just nodded and said “Well we get through it, right?” Right. So apparently, for my condition there are medication treatments (the other easy one of which I’d already been on for psych reasons and had an adverse reaction), there is putting in a shunt – which is actual brain surgery, and there is a type of eye surgery that I do not know much about nor do I know if that’s even a possibility for me. These are why I need to see Dr. M. … after I get brain scans and follow up with Dr. J.

I am scared. Often IIH (idiopathic intracranial hypertension) will resolve itself. In many patients, it does. For some of us, it doesn’t and then they try harder to find out why – is it a medication, is it something else? We don’t know. So right now my brain is acting like there is a tumor in it, even though there is not (hence the other name for it – pseudotumor cerebri). I am scared… That kind of scared where you just want to curl up in a ball and cry. But I won’t, not yet. I have too many other things to handle. Medications, finding a psychiatrist, discussing blood tests with my GP, grieving the loss of a friend, trying not to isolate myself even though I want nothing to do with people.

I may be preoccupied with my health lately, and my own life situations, but I feel like I have enough going on that it’s a valid way to react. I am used to putting myself aside for others and right now I can’t. The situations going on could land me in the hospital if I’m not careful so I need to put myself first. If others can’t see how this is a healthy way to cope, that’s just not my problem. Luckily, most of my friends, if I don’t respond to their messages, understand that I see and hear them, I just can’t invest myself right now. I have really good, very supportive friends. I am lucky in that while my health may be a problem, my support network is part of my solution.

~Brutally Honest Eccentric~