Motivation may be the first thing to go.

It starts with “I’ll write something later.” It continues on with things like “I’ll just do it tomorrow.” “Maybe I’ll do it this weekend.” Weeks go by and you don’t even really realize that you’re slowly going down. It’s not that I’m lazy… I’m just slowly sliding into depression.

I stopped talking to people on Facebook. I stopped talking to people in other chat platforms. I stopped playing Ingress. I slowed way down on my Clash Royale (for those just joining us, these are games I play on my phone close to the point of obsession).

I stopped caring. I ended an almost 8 year friendship. I told people exactly what I was thinking even if they didn’t ask because I couldn’t just pretend anymore. I probably upset family, maybe friends… I don’t intentionally hurt them, but I can’t take on the emotional burden of lying to them either.

I don’t even feel like writing this. I just know I should. I know that somewhere there is someone who is flipping through posts wondering where their motivation went… and I want them to know that it’s not just them.

Anxiety can paralyze us and stop us dead in our tracks, but depression works a little differently. It often just slowly takes away the enjoyment of everything you love… It’s called anhedonia… and it’s not just you, it’s not your fault, and it will pass.

It just really fucking blows when it’s here. Be kind to yourselves, the best you can.

~Brutally Honest Eccentric~

Drawing a blank…

It’s the anxiety again, I know it is. I have too much to do and not enough whatever i’m missing to do it. I can only handle a couple things today, meaning only a couple things CAN be handled on any given weekday morning. I, however, also have running in my head all of the things I can’t do anything about until the day they happen.

I need to make phone calls, I need to make appointments. I also have a road trip coming up to handle some things this weekend but I can do anything about that til this weekend. I also have an appointment September 7th that I can’t do anything about really until then.

These extra things weighing on my mind are making it feel impossible to do the phone call things. I stop everything I’m doing. I look at the phone. I stare blankly at it and either go back to the computer or open a game because I start to get so anxious I can’t think at all. “Do you need help making these phone calls?” Yes, yes I do… but I don’t think it’s help that anyone can give me from afar.

So I figured I’d write a blog post, and maybe getting some of this out of my head would make me more capable of handling it. I opened the page and my first thought was “Oh god, I have nothing to write about.” Hence the title.

The reality is that the thoughts come so fast that they’re gone before I can get them all out and I’m typing as fast as I can but I still can’t catch them. “Do I have to make those calls today?” “Can it wait til tomorrow?” “What am I going to do for hours in the car?” “Why do I have to keep switching doctors?” “Why do I have so many doctors?” “When did I finish my coffee?” These are random ones I tried to pull out of the mess up there, they took so long to type, I skipped over the thirty others that came and went…

I just stopped. Stared at my hands. Wondered what to finish this with. Again… Drawing a blank.

Be kind to yourself. Let whatever you do today be enough. Enjoy the eclipse if that’s in your itinerary today… Tomorrow’s another day. We can try again.

~Brutally honest Eccentric~

Life after Neurology, or during it

I may have underestimated how much I have going on in my life currently. I said I would be back after my crash, but then Monday I had my neurology appointment and Tuesday was therapy, so they each came with their own downtime. ¬†We’ll get back to my Sunday and my crashiness another time. Right now my high brain pressure is what’s overtaking my thoughts, so I’m going to go there for a bit. My neurologist, Dr. J., is consulting with another doctor, Dr. M, who I may be seeing as well to get his thoughts on my condition and my treatment issues.

I have to, at least temporarily, restart the medication that kills my sex drive as we don’t want this to worsen while we work on finding a treatment plan. The reality is I may have to continue with that medication the rest of my life. Not something I consider with any sort of happiness, but the reality is that between my vision or my sex drive, I would rather keep (both, but if not…) my vision. So, back on the pills I go, and immediately notice another side effect that I hadn’t realized. Yay. Trading pain for misery and pain isn’t high on my list of things to do, but we do what we have to in life.

Dr. M is a neuro-opthalmologist, so basically brain/eye issues, he works mainly across the river but has office hours on this side. I didn’t know whether or not there were any neuro-ops on this side, honestly, which was why I went to the Dr. J in the first place. He works at the same practice as the man that diagnosed me five years go – the one that retired… If you’re looking for a specialized specialist, it feels prudent to get the referral from someone else in the same field.

Explaining my problem to Dr. J. I broke down crying three times, maybe more… it’s a good thing they keep tissues on the desk. I was trying to explain the difficulties in making it to appointments across the river, the fact that although I have gotten past a lot of my agoraphobic issues, I can’t travel alone to the city yet, the difficulties with the side effects, how terrified i was that this was still happening…

I had to stop myself and just explain that I’ve been having a really rough month, that although IIH was plenty reason to be upset, I’m usually more composed in these situations. He’s a nice doctor, he just nodded and said “Well we get through it, right?” Right. So apparently, for my condition there are medication treatments (the other easy one of which I’d already been on for psych reasons and had an adverse reaction), there is putting in a shunt – which is actual brain surgery, and there is a type of eye surgery that I do not know much about nor do I know if that’s even a possibility for me. These are why I need to see Dr. M. … after I get brain scans and follow up with Dr. J.

I am scared. Often IIH (idiopathic intracranial hypertension) will resolve itself. In many patients, it does. For some of us, it doesn’t and then they try harder to find out why – is it a medication, is it something else? We don’t know. So right now my brain is acting like there is a tumor in it, even though there is not (hence the other name for it – pseudotumor cerebri). I am scared… That kind of scared where you just want to curl up in a ball and cry. But I won’t, not yet. I have too many other things to handle. Medications, finding a psychiatrist, discussing blood tests with my GP, grieving the loss of a friend, trying not to isolate myself even though I want nothing to do with people.

I may be preoccupied with my health lately, and my own life situations, but I feel like I have enough going on that it’s a valid way to react. I am used to putting myself aside for others and right now I can’t. The situations going on could land me in the hospital if I’m not careful so I need to put myself first. If others can’t see how this is a healthy way to cope, that’s just not my problem. Luckily, most of my friends, if I don’t respond to their messages, understand that I see and hear them, I just can’t invest myself right now. I have really good, very supportive friends. I am lucky in that while my health may be a problem, my support network is part of my solution.

~Brutally Honest Eccentric~