I’m SUPER not excited about the upcoming couple of weeks but I am actually a bit excited about the prospect of being on a medication that does not cause widespread chronic pain. Side effects of medications, whether they’re for physical health or mental health, can often suck. Switching medications gives you this window where you’re finishing off the old side effects, no longer getting the benefits of the old medication and starting a new one to get new side effects… Let’s be honest. The process sucks. A lot.
I did finally get to see the new neuro-op for the intracranial hypertension thing I have. If you’ve joined us recently – basically the pressure of my cerebro-spinal fluid is too high and creates a migraine that lasts 24/7 and can actually take your vision away. I temporarily lost a third of the vision in my left eye. The doctor was concerned it might be permanent (but I got it back). I’ve been on one medication for it for most of the last five years, and when I thought it was a temporary thing (which for many people, apparently this “rare” freakin condition resolves itself… ) I was willing to handle the loss of libido, the increased joint pain. Vision’s kinda important to me.
Mine is most likely caused by one of the medications I’m on that I will be on for the rest of my life. That makes this condition life-long for me. All of the sudden having no sex drive and ever increasing chronic widespread pain was not feeling like something I could handle. So I got a new doc…. I got a new prescription…
This means a few weeks where the old medication won’t be high enough to help, and some time to start the new one. This means likely a couple weeks of crippling headache pain. YAY! … no. not yay… but if this new medication doesn’t have the same horrid side effects as the old one, it WILL be YAY.
Unfortunately med changes are trial and error… It’s all risk/reward. The same is true of mental health medications. Yes, some of them may make you sleepy, or even worse… but then you change them and sometimes you’re lucky enough to find the ones that help without making things worse…. The ones that make you start to feel like you can live your life again rather than just survive it. Note: some people are medication resistant and a lot of this won’t apply, but some of us need to be reminded that it can take more than one or two tries to find what we need.